International Albinism Awareness Day

International Albinism Awareness Day History

International Albinism Awareness Day (IAAD) is an annual observance dedicated to highlighting the experiences, achievements, and contributions of persons with albinism worldwide. This significant day aims to increase public knowledge and understanding of albinism, dismantling deeply-rooted misconceptions and falsehoods, and promoting the inclusion, protection, and enjoyment of human rights for those living with albinism. The primary objective of this commemoration is to bring people together, in solidarity, to create a better world for people with albinism.

With albinism affecting approximately one out of every 17,000 people in the United Kingdom, it is essential to raise awareness and promote understanding about this genetic condition within the nation. Awareness campaigns and initiatives play a crucial role in countering social stigma, fostering empathy, and ensuring equal opportunities for all. In December 2014, the United Nations General Assembly adopted a resolution proclaiming June 13 as International Albinism Awareness Day, in recognition of the challenges faced by persons with albinism globally.

In the United Kingdom, International Albinism Awareness Day is marked by numerous activities and events aimed at raising awareness and promoting inclusivity for those with albinism. These include seminars, workshops, and social media campaigns, which provide a platform for exchanging ideas and sharing first-hand experiences of living with albinism. These events not only foster solidarity but also offer valuable support to individuals and families affected by albinism. Every year on June 13, communities throughout the United Kingdom come together to celebrate and empower persons with albinism, demonstrating the nation's commitment to equality, inclusion, and respect for all.

International Albinism Awareness Day facts

• It is estimated that about 1 in 17,000 people worldwide has some form of albinism.
• Albinism is often associated with various visual impairments, such as nystagmus (involuntary eye movements), strabismus (crossed or misaligned eyes), and photophobia (sensitivity to light).
• Albinism is caused by a genetic mutation that affects the production of melanin. Melanin is the pigment responsible for coloring the skin, hair, and eyes. It is typically inherited when both parents carry the gene mutation.
• In the UK, albinism affects approximately 1 in 17,000 people.
• People with albinism in the UK may be more susceptible to skin cancer due to reduced melanin production. They also often have vision issues due to the lack of pigment in their eyes.

In the News and Trending in the UK for International Albinism Awareness Day

Top things to do in the UK for this observance

• Register for the virtual choir hosted by National Organization for Albinism and Hypopigmentation.
• Explore a reading list that can help educate and spark conversation about albinism.
• Raise funds for albinism organizations such as Albinism Fellowship UK & Ireland or other groups working to support people with albinism and their families. You could organize a bake sale, charity walk, or other fundraising activities.
• Look out for events being organized by local albinism organizations, such as Albinism Fellowship UK & Ireland. You could attend an event or even organize one yourself to raise awareness in your community.